This element explores the progressive communication journey of individuals with congenital deafblindness, from early presymbolic interactions to the emerge
Topic Synopsis
This element explores the progressive communication journey of individuals with congenital deafblindness, from early presymbolic interactions to the emergence of symbolic systems. It emphasises the critical role of tailored intervention, the recognition of each person's unique developmental pathway, and the ethical imperative of actively seeking and honouring the individual's expressed preferences and choices in all decisions affecting their lives.
Key Concepts & Core Principles
- Congenital vs. acquired deafblindness: Congenital means present from birth, so the individual has no memory of sight or sound. This affects their concept of language and communication, which must be built through tactile and kinaesthetic means.
- Tactile communication methods: These include hand-under-hand signing (e.g., adapted British Sign Language), object cues (using real objects to represent activities), and on-body signing (signing on the person's body). Each method relies on touch and movement.
- Co-active movement: A technique where the communication partner moves with the deafblind person, guiding their hands or body to perform an action together. This builds understanding of routines and shared experiences.
- Person-centred planning: Communication strategies must be tailored to the individual's preferences, routines, and sensory responses. This includes using consistent cues, allowing processing time, and respecting the person's pace.
- The role of the communication partner: The partner must be attuned to subtle cues, such as changes in breathing, muscle tension, or hand pressure. They need to be patient, observant, and willing to adapt their approach.
Exam Tips & Revision Strategies
- Use case studies to ground your explanations in real-world scenarios; assessors look for application of theory.
- When describing communication methods, always link them to the individual's specific sensory and cognitive profile rather than generic descriptions.
- Ensure you address the final learning objective explicitly by discussing at least two concrete strategies for obtaining the deafblind person's voice, such as leveraging familiar communication partners or using low-tech AAC devices with personalised overlays.
Common Misconceptions & Mistakes to Avoid
- Assuming all congenitally deafblind people follow the same communication developmental path or can be taught using one standard method.
- Confusing presymbolic communication with a lack of communicative intent, thereby dismissing early behaviours as non-communicative.
- Overlooking the individual's capacity to express preferences, leading to tokenistic rather than genuine involvement in decision-making.
Examiner Marking Points
- Award credit for demonstrating a clear distinction between presymbolic and symbolic communication stages, with relevant examples from congenital deafblindness.
- Assess for the ability to identify at least two practical strategies for sharing communication at presymbolic levels (e.g., intensive interaction, co-active movement).
- Look for evidence of explaining how to adapt communication methods (e.g., tactile signing, object cues) to meet individual sensory and cognitive needs.
- Credit where the learner explicitly references methods for eliciting and validating the deafblind person's views, such as supported decision-making or personalised communication profiles.