This subtopic equips learners to lead and manage high-quality end of life care services for children and young people, integrating current legislation such
Topic Synopsis
This subtopic equips learners to lead and manage high-quality end of life care services for children and young people, integrating current legislation such as the Mental Capacity Act and local palliative care policies. It focuses on applying theoretical models like the hospice philosophy and stages of grief to design responsive services, while building robust multi-agency relationships and supporting staff through supervision and training. The element also emphasises continuous quality improvement through service evaluation, audit, and incorporating the voices of children, families, and carers.
Key Concepts & Core Principles
- Rights-based practice: Understanding and implementing the UNCRC and the Rights of Children and Young Persons (Wales) Measure 2011 in daily residential care.
- Regulatory compliance: Knowledge of the Children’s Homes Regulations (Wales) 2002, National Minimum Standards, and the role of CIW in inspection and registration.
- Person-centred leadership: Applying the principles of the Social Services and Well-being (Wales) Act 2014 to ensure care is tailored to each child’s needs, wishes, and outcomes.
- Trauma-informed care: Leading teams to use approaches like PACE (Playfulness, Acceptance, Curiosity, Empathy) to support children who have experienced trauma.
- Quality assurance: Using tools such as audits, supervision, and reflective practice to maintain and improve service standards.
Exam Tips & Revision Strategies
- When evidencing leadership, use specific examples of service development, such as implementing a new bereavement support pathway, and link to relevant legislation and policy.
- Demonstrate partnership working by providing minutes of multi-agency meetings or joint care plans that illustrate effective collaboration.
- For continuous improvement, include data from audits, surveys, or feedback forms, and show how you used the findings to make measurable changes.
- Support claims with reflective accounts that critically evaluate your own practice and its impact on children, families, and the team.
Common Misconceptions & Mistakes to Avoid
- Confusing palliative care with end of life care, leading to late or inadequate referrals to specialist services.
- Failing to involve children and families in advance care planning, resulting in decisions that do not reflect the individual’s preferences and values.
- Neglecting the emotional and psychological support needs of staff, which can lead to burnout and reduced quality of care.
- Overlooking cultural, spiritual, or religious needs in care plans, which can cause distress and dissatisfaction.
Examiner Marking Points
- Award credit for demonstrating detailed knowledge of relevant legislation, including the Children Act 1989/2004, Mental Capacity Act 2005, and local end of life care policies, and explaining how they shape service development.
- Award credit for evidencing the application of theoretical frameworks such as Kübler-Ross’s stages of loss, the integrated care pathway, or a strengths-based approach in designing and delivering care.
- Award credit for showing effective leadership in establishing and sustaining collaborative partnerships with external agencies like hospices, social services, and spiritual care providers.
- Award credit for presenting a clear staff support strategy, including regular supervision, debriefing sessions, and access to emotional support resources, to promote excellence in care delivery.
- Award credit for implementing a quality improvement cycle, such as Plan-Do-Study-Act (PDSA), using feedback from families and outcome measures to enhance service quality.